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News

Got any ED news you wish to publish? Click here to submit a story

 

 

Adrenaline Junkie Builders Pedal, Pound, Putt & Pass for Charity

Four teams of high octane, sports enthusiasts and property professional from construction firm, Strategic Team group go all out to raise money for charity.

for further information on Strategic Team Group visit http://strategicteamgroup.com

To make a donation visit http://uk.virginmoneygiving.com/fundraiser-web/fundraiser/sh...

 

Health Care Plan

We now have a Health care Plan for use in Schools and Nurseries. This can be downloaded from the Members Section

 

Familes make the newspapers
Two of our families have made the national and local newspapers and magazines recently you can read their articles by following the links below
http://www.express.co.uk/posts/view/267634/A-hot-day-will-kill-me
Date Added: 27/09/2011


OUR LATEST NEWSLETTER Winter 2014 IS NOW AVAILABLE FOR DOWNLOAD
Sign in to the Members Section and download issue number 62 under Newsletters
Date Added: 02/02/2014

 


Max's story Jeans for Genes film
to see Max's film click on the link below http://www.youtube.com/watch?v=cAl6ZoQ7Mes
Date Added: 01/02/2011

 


Ectodermal Dysplasia International Registry Information
Bringing Patients and Researchers Together On March 1st, the NFED (the ED support group in America) launched the first ever Ectodermal DysplasiasInternational
Click here to read more >>
Date Added: 20/05/2010

 


 

 

 


 

 


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