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     Ectodermal Dysplasia Society
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Support

The ED Society offers support covering the different aspects of an Ectodermal Dysplasia syndrome.

There are many areas in which Ectodermal Dysplasia affects our lives and information about the services available will help tremendously with the day to day management of ED.

It is not just the medical understanding of ED or the practicalities of living with ED, but also the emotional effects on both the individuals, parents, relatives and friends.

More information about support can be found in the Members section, it includes information on DLA, Helathcare Plans for schools and much more. If you cannot find the information you require on our website or if you just want to talk to someone who knows what you are going through, please do not hesitate to contact us either by email or telephone: 01242 261332

The ED Society also has a Support Fund which is only open to members, guidelines and application forms are available through the Members section in the Information Directories.


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